Members SilverPlated Posted September 7, 2006 Members Share Posted September 7, 2006 * mojo * Link to comment Share on other sites More sharing options...
Members MountainDew Posted September 8, 2006 Members Share Posted September 8, 2006 I don't know either one of you two, but I read every post in this thread. As the father of a 2 year old boy, I got choked up reading this. I know how much you must love Dustball. Mojo, prayers and all the rest your way! Link to comment Share on other sites More sharing options...
Members smith10210 Posted September 8, 2006 Members Share Posted September 8, 2006 mojo sent:wave: Link to comment Share on other sites More sharing options...
Members Kevman Posted September 9, 2006 Author Members Share Posted September 9, 2006 Hey there forumites. Just thought I'd drop in and say hi.Dustball had more chemo Wednesday. The days after are usually pretty bad but Thursday was not so bad, today was an ok day as well. Dustin finally got sick of his hair (what remained of it) and asked me to buzz it off. It was getting matted and tangled because he could not brush it. If he tried it just pulled right out so...now he has a buzz cut. Rather a handsome kid so it looks fine. I buzzed mine too, so he would not be alone in his lack of hair. I got him out into the music room today. We actually had a little jam session, it ruled. I showed him a Bowie song and then we jammed a little AC/DC. Good times. We caught about 1/2 of the movie where the stoners are trying to get to a KISS concert. That had us both laughing pretty hard. His head hurts and his stomach is giving him problems but, considering the evil concoction of chemicals they are pumping into him he is doing ok. I learned that he has lost more weight than the docs want though. They are bringing in a nutricionist to help him gain some back. Before he got sick: 225#Wednesday: 176# Yeah..I know... He continues to kick ass. Every morning when he wakes up it means that he has beat this thing's ass for another day. He has a new fish tank set-up..we have been watching the fish develope territories. Very theraputic for me anyway. I visit this board many times during the day. I still read every post pretty frequently. Some time this weekend I am going to try and Have Dustball play some on a track that I will post for us all to wail over. I may even get him to cut a lead but I'm not going to push it. Peace out everyone. Link to comment Share on other sites More sharing options...
Members axegrinder Posted September 9, 2006 Members Share Posted September 9, 2006 That's a cool idea having all of us jam with Dustin. What better way to pass along MOJO?? :thu: Link to comment Share on other sites More sharing options...
Members GuitarNoobie Posted September 9, 2006 Members Share Posted September 9, 2006 hang in there guys...very cool of you kevman to buzz your hair too... way to support your son in tough times.here's to you and dustball and him recovering Link to comment Share on other sites More sharing options...
Members jjpistols Posted September 9, 2006 Members Share Posted September 9, 2006 my girlfriend got 12" of hair cut off and sent to Locks of Love stay strong, Boss Link to comment Share on other sites More sharing options...
Members Veee number 2 Posted September 9, 2006 Members Share Posted September 9, 2006 Good luck - I hope everything works out for you and your son. Mucho Mojo and prayers sent... Link to comment Share on other sites More sharing options...
Members KATMAN Posted September 10, 2006 Members Share Posted September 10, 2006 Kevman,I'll be praying for your son as well as the rest of your family. Hang in there and be strong. Link to comment Share on other sites More sharing options...
Members JHX Posted September 12, 2006 Members Share Posted September 12, 2006 My family and I send our prayer's. My nephew had cancer of the prosrate and made it.Treated at Robert Wood Johnson, New Brunswick NJ, an excellent hospital for cancer treatment. . Sloan Kettering in NY, is also excellent.Make sure you use one of them if you can there the best. Really suck's to go through something like this.I'll keep you and your's in my prayer's. Peace To You Rob. Link to comment Share on other sites More sharing options...
Members Ancient Mariner Posted September 12, 2006 Members Share Posted September 12, 2006 Still thinking and praying for you guys.Tell him 175lb is a GREAT weight to be. Link to comment Share on other sites More sharing options...
Members georgestrings Posted September 12, 2006 Members Share Posted September 12, 2006 Prayers and best wishes sent... - georgestrings Link to comment Share on other sites More sharing options...
Members geddins81 Posted September 13, 2006 Members Share Posted September 13, 2006 Hang in guys...we're still thinking and praying....God Bless Link to comment Share on other sites More sharing options...
Members crabfunk Posted September 15, 2006 Members Share Posted September 15, 2006 Originally posted by Kevman Hey there forumites.Just thought I'd drop in and say hi.Dustball had more chemo Wednesday. The days after are usually pretty bad but Thursday was not so bad, today was an ok day as well.Dustin finally got sick of his hair (what remained of it) and asked me to buzz it off. It was getting matted and tangled because he could not brush it. If he tried it just pulled right out so...now he has a buzz cut. Rather a handsome kid so it looks fine. I buzzed mine too, so he would not be alone in his lack of hair.I got him out into the music room today. We actually had a little jam session, it ruled. I showed him a Bowie song and then we jammed a little AC/DC. Good times. We caught about 1/2 of the movie where the stoners are trying to get to a KISS concert. That had us both laughing pretty hard.His head hurts and his stomach is giving him problems but, considering the evil concoction of chemicals they are pumping into him he is doing ok.I learned that he has lost more weight than the docs want though. They are bringing in a nutricionist to help him gain some back. Before he got sick: 225#Wednesday: 176#Yeah..I know...He continues to kick ass. Every morning when he wakes up it means that he has beat this thing's ass for another day.He has a new fish tank set-up..we have been watching the fish develope territories. Very theraputic for me anyway.I visit this board many times during the day. I still read every post pretty frequently. Some time this weekend I am going to try and Have Dustball play some on a track that I will post for us all to wail over. I may even get him to cut a lead but I'm not going to push it.Peace out everyone. That's a strong kid, with a strong dad and family. Much mojo and prayers sent from Washington state. Link to comment Share on other sites More sharing options...
Members Kevman Posted September 15, 2006 Author Members Share Posted September 15, 2006 Hello everybody, Dustin has not been up for playing this week. I will get him to join in the HCEG jam soon though. Tuesday was more f-ing chemo. It was the last spinal injection of this round. They also took another bone marrow fluid sample and another sliver of marrow for biopsy so we can tell along with his bloodwork where he stands. We will find out Tuesday when he is scheduled for yet another cat scan to moniter the size of the cancerous nodes. Wednesday was unfortunately another son of a bitch for Dustball. They had told us before that he had to get his braces removed to lessen the chances of an infection in his mouth as he does not have the immune system to fight such a thing. His orthondontist appointment was for Wed. The oncologists called us and told us that his platelet count was too low to have the dental procedure done and that he needed a transfusion before going to the orthodontist. So he got up first thing and went in for a transfusion. Headache was pounding from the chemo the day before. Went directly from the hospital to the ortho to have the braces removed. Sat for another couple of hours head pounding and back aching (spinal + marrow all in his back). Thursday was a home day. Too tired and head hurting to bad to move around much. Today his appetite returned (gooood) and his head was hurting less. Now his back is hurting all over. I know he sits and waits for me to get home and give him his nightly back rubs..this is when we catch up. I am going to be signing him up for the make a wish foundation. He thinks he may ask them to hook him up with a meeting and lesson from Derek Trucks. I think that'd be sweet but whatever he requests would be cool by me. He deserves anything he asks for. When I went into his room tonight he was holding a sweet brand new Jimi Hendrix book and a killer The BRICKS ATX sticker. These came from Raines from Germany and the ever hip daddy fresh JJ pistols. Dustin sends his thanks..BIG time. I can't stress how nice it is to see him smile (sans braces!) He really is quite the handsome kid if I do say so myself. I went to a support group tonight for parents of kids with cancer.wow. It's hard to explain. Not glad to be there by any stretch but, everyone in the room knows what I feel. My best friends as cool as they are and as concerned and helpfull as they can be don't understand..These folks do. Making new friends. I know I tend to ramble but this thread is one of the few places I feel comfortable talking about Dustball's fight. His attitude is good. He hurts but is remaining cool. His school has started sending teachers that will tutor him throughout the year this year. Cool. His highschool friends are doing a fund raising drive for him. Very cool. It will bring him closer to the SG he wants so badly. Last Sunday I was handed an envelope and card from his brother's soccer team with $260 in it they had collected at their seaon opening fair. They also dedicated the first win of the season to Dustin. Kick ass. Ok. I think I'm done now. Thank you. All of you for continuing to stop by and send your strenght prayers and mojo. I know it's helping. Dustin will get around to posting. I'm not rushing it. The internet has just as many scary things on it as good positive things. He is focused on getting well. Corny as it sounds I love you guys. Rock on. Link to comment Share on other sites More sharing options...
Members GRIZ Posted September 15, 2006 Members Share Posted September 15, 2006 Prayers still going for Dustin you and family. Link to comment Share on other sites More sharing options...
Members kevorkazito Posted September 15, 2006 Members Share Posted September 15, 2006 Thoughts and prayers are with you and your family so he can squash that 'bug'. Link to comment Share on other sites More sharing options...
Members Cooker Posted September 15, 2006 Members Share Posted September 15, 2006 Best wishes to you and your family. Be strong for your boy Link to comment Share on other sites More sharing options...
Members Splendor Posted September 16, 2006 Members Share Posted September 16, 2006 I appreciate you sharing this with us Kevman and I'm glad to hear you've found some friends who can relate to what you're going through. I can't pretend that I understand, but an overwhelming sense of love for your son shines through in your posts and I know that has to help Dustball. Stay positive and keep going! We're all pulling Dustball! Link to comment Share on other sites More sharing options...
Members stratoskier Posted September 16, 2006 Members Share Posted September 16, 2006 Hey Kev and Dustball, I don't post on HC a lot, but I read this thread everyday. I have 3 sons, so maybe I can relate to what you're dealing with a little bit. But probably not... you're feeling much more than I can possibly imagine. All I know is that it must be tough... very, very tough. You're doing a good thing by sharing your thoughts and your day-to-day happenings here. That's gotta be therapeutic for you. There are a whole lot of people following your progress, probably many more than you would expect... and we're all sending that good mojo you asked for. Hang in there -- I'm thinking about you two. And yeah, I think we all love you right back. Bert Link to comment Share on other sites More sharing options...
Members mojoray Posted September 16, 2006 Members Share Posted September 16, 2006 Kevman-I can only guess what you and your family are going through now, best I can tell you is medicine is moving along real fast, with regard to hematologic cancers. They know a whole lot more now than they used to and can do a lot more. I had a bone marrow transplant in 2002 for a related problem and am doing lots of gigs now. He'll be OK, brother, but as you've found, it won't be easy. He has youth on his side. He's added to my daily prayers! Link to comment Share on other sites More sharing options...
Members Jimmy310 Posted September 16, 2006 Members Share Posted September 16, 2006 Hey kevman, my prayers and mojo are coming from boston now. I just moved up here to start my 3rd year of architecture school. Anyways, keep doing what your doing. You guys are great and truly a inspiration. God bless you guys. Link to comment Share on other sites More sharing options...
Members brassic Posted September 16, 2006 Members Share Posted September 16, 2006 I've got tears in my eyes from reading your update, Kevman. Dustin sounds like a brave and tough kid. You are all in my thoughts and I'm sending all the positive mojo humanly possible. Link to comment Share on other sites More sharing options...
Members thefatstrat Posted September 16, 2006 Members Share Posted September 16, 2006 mojo and prayers sent Link to comment Share on other sites More sharing options...
Members Metal_Hermit Posted September 17, 2006 Members Share Posted September 17, 2006 Prayers on the way. Gods speed to your boy. Link to comment Share on other sites More sharing options...
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