Members Fusion1 Posted August 16, 2006 Members Share Posted August 16, 2006 Praying for a match Kev, and hope Dustin is doing ok throughout this procedure and keeping positive thoughts! Link to comment Share on other sites More sharing options...
Members Woodstock1969 Posted August 16, 2006 Members Share Posted August 16, 2006 I hope your son is ok, best wishes, and sorry. Link to comment Share on other sites More sharing options...
Members axegrinder Posted August 17, 2006 Members Share Posted August 17, 2006 It will be a long road, but do whatever it takes for you to have a positive attitude around your son. My best goes to your boy, you and your family. Peace. ~Kyle Link to comment Share on other sites More sharing options...
Members gt5litre Posted August 17, 2006 Members Share Posted August 17, 2006 Hey Kevman, So Sorry to hear about your son. I lost a childhood friend to Leukemia in the early 70s. MOJO and best wishes to your son and you and your family. Stay strong and he will follow your example. Good things can come from this; my wife's cancer fight brought me back to playing guitar and singing after many years away. Brent aka gt5litre Link to comment Share on other sites More sharing options...
Members MONGOOZ Posted August 17, 2006 Members Share Posted August 17, 2006 kevman......you can start here, if your family members don't match.....good luck and lots of prayers and mojo to you and the boy http://www.marrow.org/ http://www.abmdr.org/ Link to comment Share on other sites More sharing options...
Members Guitin Better Posted August 18, 2006 Members Share Posted August 18, 2006 Kevman, I can't say I know how YOU fell right now but I can tell you how I felt when my son was diagnosed with Acute Mylogenous (spelling) Leukemia (AML). I felt like there was no hope. He was 8 years old and he was SO sick. The cancer cells accumulated in something called the mastoid cavity near the ear and caused him extraordinary ear pain. His pediatrician thought it was an ear infection and treated him with several rounds of antibiotics before a different Dr. decided he should see a specialist. That specialist immediately sent him to Childrens Hospital to be assessed and admitted. He went through three months of hell but now he is a 6' 3" college junior preparing for a career in IT. I tell you all of this to let you know that there is a tomorrow and that your son can pull through this. We had a wonderful group of church friends who helped us through the ordeal. One word of advice, when people offer to help . . . let them. We sometimes think we are imposing on others, but they want to help you AND YOU WILL NEED THE HELP. If you would like to talk further with someone who has been where you are I would be glad to do that. You can private message me (I think this forum supports that). God's Blessings! I'll be praying for your family. Dan B Link to comment Share on other sites More sharing options...
Members the new guy Posted August 18, 2006 Members Share Posted August 18, 2006 Kevman, Sending out peace and love to you and your family in your time of need..... Link to comment Share on other sites More sharing options...
Members mmcquain Posted August 18, 2006 Members Share Posted August 18, 2006 I'm praying for your son and family... stay strong... God cares. Link to comment Share on other sites More sharing options...
Members thredlok Posted August 18, 2006 Members Share Posted August 18, 2006 he's in my prayers Link to comment Share on other sites More sharing options...
Members Funkytone Posted August 18, 2006 Members Share Posted August 18, 2006 love strength and all the mojo I can muster is thereFunkytone Link to comment Share on other sites More sharing options...
Members NoVaTa2iSt Posted August 18, 2006 Members Share Posted August 18, 2006 I couldn't even imagine, keep yer chin up. Link to comment Share on other sites More sharing options...
Members dimmypage Posted August 18, 2006 Members Share Posted August 18, 2006 Have faith.prayers headed to your family. Link to comment Share on other sites More sharing options...
Members go cat go Posted August 18, 2006 Members Share Posted August 18, 2006 Mojo and prayers to you and your family. I survived the evil C. A day never goes by that i do not thank God for my fortune. I hope it all works out for you as well. Link to comment Share on other sites More sharing options...
Members Sambora#2 Posted August 19, 2006 Members Share Posted August 19, 2006 Still prayin dude. Keep us posted. Link to comment Share on other sites More sharing options...
Members Kevman Posted August 19, 2006 Author Members Share Posted August 19, 2006 Thanks again for all the positive vibes mojo and prayer. Dustin started chemo on Tuesday 2 different chemicals (no way I could remember their names now) one into his spinal fluid and the other into the IV port in his chest. He has been on some pretty big doses of steroids (prednosone) since Monday. These are all good things. His white bloodcell count is as of now "normal". He is down to 3mg an hour of morphine from 5mg and he is not using his pain button which supplies and additional 2mg every 10 minutes if needed. His lungs are exchanging oxygen and carbon dioxide much better, to the point that he only needs to be on oxygen when in a deep sleep. He still has some blood clotting in his upper arm and one that has moved into his neck. He was supposed to get the next chemo treatment on Friday which has been put off untill Monday. Apparently he is still in enough risk to be in the ICU under close watch. He is loosing weight, his face is loooking thinner even though the steroids are supposed to increase his appetite he has not been eating much at all (this is a kid who is 6'2" and 225# befoer he got sick). All in all I am encouraged. I have no choice.Hopefully the blood clotting issues will have worked themselves out by MOnday so that the good doctors can continue with the chemo. The next chemical they need to inject directly into his thigh into deep muscle tissue.This chemical also has the side effect of causing blood clotting, hence the worry. This is also a stage of treatment that cannot be skipped. INstead of doing 9 seperate doses of this leg shot over the next couple of weeks they are going to give him one super mega dose. I believe that this is also the chemical that tends to cause hair loss.As I am sure some of you can relate. He is bumming big time about that probability. We are far from out of the woods. We do thank this forum for all of the support though. You guys rule on ice. By the way. There IS a guitar in the ICU now just in case he feels like getting his jam on on. Peace out. I will keep you posted. Link to comment Share on other sites More sharing options...
Members Doug Darkwater Posted August 19, 2006 Members Share Posted August 19, 2006 I'm sending my best wishes right now for Dustin. I can't possibly feel what you do, but I'm feeling something awful. Mojo sent. Link to comment Share on other sites More sharing options...
Members jerry_picker Posted August 19, 2006 Members Share Posted August 19, 2006 Be strong. Prayers and mojo. Link to comment Share on other sites More sharing options...
Members dimmypage Posted August 19, 2006 Members Share Posted August 19, 2006 this is good news!!! Link to comment Share on other sites More sharing options...
Members ThrashmetalErik Posted August 19, 2006 Members Share Posted August 19, 2006 Thoughts and best wishes sent. Even without hair you can thrash with the best of them! Link to comment Share on other sites More sharing options...
Members Kevman Posted August 20, 2006 Author Members Share Posted August 20, 2006 Here is a pic of me and Dustball this morning. He said " don't really know if I can smile". I said "just think of booooobies )! Link to comment Share on other sites More sharing options...
Members Splendor Posted August 20, 2006 Members Share Posted August 20, 2006 It sounds like they're not wasting any time trying to get things under control. I'll keep Dustin and your family in my thoughts and prayers. Link to comment Share on other sites More sharing options...
Members ArrMatey Posted August 20, 2006 Members Share Posted August 20, 2006 I'm not the most regular around here but MAJOR mojo to you, your son and the rest of your family.Stay together and make sure to try to keep your chins up. You'll prevail I hope sincerely! Link to comment Share on other sites More sharing options...
Members GRIZ Posted August 20, 2006 Members Share Posted August 20, 2006 Prayers for your son, you, and family. Link to comment Share on other sites More sharing options...
Members Cooley Posted August 20, 2006 Members Share Posted August 20, 2006 Aye,here's to hoping he'll be fine...good idea about the Ipod,music heals everything:thu: Link to comment Share on other sites More sharing options...
Members mmonster Posted August 20, 2006 Members Share Posted August 20, 2006 you are in my prayers.as a cancer victim recently diagnosed with stage IV esophagus cancer,I know how hard this must be on you.good to see your son is improving. Link to comment Share on other sites More sharing options...
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