Members The Bear Posted August 13, 2006 Members Share Posted August 13, 2006 Glad to hear that you are recieving some positive news.What the scientific and medical community can do is amazing.A coworkers son has neuroblastoma, which is fairly rare too.He's around 9 yrs. old.He's been involved in top research and treatment for pediatric medicine.If Dustball has a rare form you can expect the best in care. You, your son and your family will continue to be in my prayers.Ya'll just have to keep on moving forward.Good things will happen. The Bear Link to comment Share on other sites More sharing options...
Members Splendor Posted August 13, 2006 Members Share Posted August 13, 2006 I'm glad to hear that the diagnosis is pointing to something more easily treated. There's no doubt that chemo will be rough. But, you and Dustin will remain in my thoughts and prayers and hopefully the treatment goes well. Link to comment Share on other sites More sharing options...
Members Fusion1 Posted August 13, 2006 Members Share Posted August 13, 2006 Prayers sent out to your son and your family. Glad things are turning out better than worse. Stay strong! Link to comment Share on other sites More sharing options...
Members sonrise Posted August 13, 2006 Members Share Posted August 13, 2006 My prayers are with you and your family...Our God performs great miracles everyday...Ill be asking Him for a major one here...Ill also be asking for strength for you Kevman and the rest of the Kev family...May the God of Creation be with the Drs. as they work with the Duster...May their minds be clear so they can use their God given talents on your son....May our Lord also Bless each of you with and extra portion of His strength, grace and mercy... Dear Lord you are the Creator of the Universe and all, ALL things are at your command...I ask that you as the great phsician that you are heal this boy and grant peace and comfort to the rest of the family...You say that we should pray big, so I ask for a big miracle in this family...I ask all these things by the Blood and Name of your precious Son, Jesus...Amen Link to comment Share on other sites More sharing options...
Members riffy Posted August 13, 2006 Members Share Posted August 13, 2006 Originally posted by Kevman Harmony Central Electric Guitar Forum,As many of you may know my oldest son who is 16 is also a forum member. "Dustball". He does not post too much but lurks here quite a bit.On Wednesday of last week he started to complain of pain in his abdomen. Thursday we took him to the pediatrician who said that we needed to bring him to the ER. We did. The ER told us that he needed to be admitted. He was.Test after test was performed. Poor dude looks like a pin cushion.After 2 days in the Hospital the specialists conferred and decided that he should be transferred to the childrens hospital in Newark where they have an excellent pediatric ICU.Dustins has a super enlarged spleen that has grown so rapidly that it is not getting a sufficient blood supply. Feels like having a charlie horse in an internal organ. This spleen enlargement is a result of his body having 4x the normal amount of white blood cells. Not good. Some of these cells are abnormal or immature.This means my boy has cancer of his blood.. Lukemia..They are doing a bone marrow extraction to test what type of lukemia we are going to have to deal with, Acute or chronic. Either is treatable and either way we will stay as positive as we can.He is sleeping now that they have him on a morphine drip for all the internal pain (first time he has really been able to for days). He has been unable to take full breaths due to his spleen bumping into his diaphram and creating all kinds of pain. This means he has to get extra O2 he hates the tubes in his nose.The iPOD has been a cool thing to have. He can still listen to his tunes and he enjoys it especially right after his pain meds. I just was hoping that maybe I could get a little something from you folks in the way of mojo,strength, prayers whatever you can do. I'm a total wreck. This is my buddy. My jam friend, my first son. I have to stay positive for him. Peace out yall. Send some love to Newark. Kevman,Your son has my prayers coming his way! I have an 18 year old son that I am taking off to college today. I understand your pain and anguish. Stay strong and positive for him totally. He is COUNTING on YOU! Please, tell him if you think it is appropriate that he is getting my prayers even now. Gary Link to comment Share on other sites More sharing options...
Members guitarkid∞ Posted August 13, 2006 Members Share Posted August 13, 2006 wow kevman...glad to hear the better news! sending more prayers and hoping all goes well! Link to comment Share on other sites More sharing options...
Members anindrew Posted August 13, 2006 Members Share Posted August 13, 2006 I hope you son recovers soon. I'm sending mojo and praying for him. Link to comment Share on other sites More sharing options...
Members wats Posted August 13, 2006 Members Share Posted August 13, 2006 I don't post here very often but I wanted to let you know your in our thoughts and prayers. Link to comment Share on other sites More sharing options...
Members EC1000 Posted August 13, 2006 Members Share Posted August 13, 2006 positive vibes sent to you and dustball from EC1000 Link to comment Share on other sites More sharing options...
Members FearTheVoices Posted August 13, 2006 Members Share Posted August 13, 2006 Originally posted by Kevman Harmony Central Electric Guitar Forum, As many of you may know my oldest son who is 16 is also a forum member. "Dustball". He does not post too much but lurks here quite a bit. On Wednesday of last week he started to complain of pain in his abdomen. Thursday we took him to the pediatrician who said that we needed to bring him to the ER. We did. The ER told us that he needed to be admitted. He was. Test after test was performed. Poor dude looks like a pin cushion. After 2 days in the Hospital the specialists conferred and decided that he should be transferred to the childrens hospital in Newark where they have an excellent pediatric ICU. Dustins has a super enlarged spleen that has grown so rapidly that it is not getting a sufficient blood supply. Feels like having a charlie horse in an internal organ. This spleen enlargement is a result of his body having 4x the normal amount of white blood cells. Not good. Some of these cells are abnormal or immature. This means my boy has cancer of his blood.. Lukemia..They are doing a bone marrow extraction to test what type of lukemia we are going to have to deal with, Acute or chronic. Either is treatable and either way we will stay as positive as we can. He is sleeping now that they have him on a morphine drip for all the internal pain (first time he has really been able to for days). He has been unable to take full breaths due to his spleen bumping into his diaphram and creating all kinds of pain. This means he has to get extra O2 he hates the tubes in his nose. The iPOD has been a cool thing to have. He can still listen to his tunes and he enjoys it especially right after his pain meds. I just was hoping that maybe I could get a little something from you folks in the way of mojo,strength, prayers whatever you can do. I'm a total wreck. This is my buddy. My jam friend, my first son. I have to stay positive for him. Peace out yall. Send some love to Newark. MAJOR MOJO TO YOUR SON Link to comment Share on other sites More sharing options...
Members book_of_lies777 Posted August 13, 2006 Members Share Posted August 13, 2006 best wishes to you & your family Link to comment Share on other sites More sharing options...
Members Kingsnake Posted August 13, 2006 Members Share Posted August 13, 2006 More prayers & major mojo sent. Link to comment Share on other sites More sharing options...
Members keNz Posted August 14, 2006 Members Share Posted August 14, 2006 Stay strong brother. MOJO. Link to comment Share on other sites More sharing options...
Members eflat Posted August 14, 2006 Members Share Posted August 14, 2006 good luck, best wishes. Link to comment Share on other sites More sharing options...
Members Chuckster1955 Posted August 14, 2006 Members Share Posted August 14, 2006 All the positive vibes I can muster up are on their way to you and your son. Best of luck, and stay strong and positive. Link to comment Share on other sites More sharing options...
Members Jimmy310 Posted August 14, 2006 Members Share Posted August 14, 2006 Still Praying for Dustin and Kev. Stay strong brothers! God Bless Link to comment Share on other sites More sharing options...
Members marekk Posted August 15, 2006 Members Share Posted August 15, 2006 kevman...praying for a good report on the new tests. my son was younger he had some serious health issues, know what you must be feeling..... God bless! Link to comment Share on other sites More sharing options...
Members Kevman Posted August 15, 2006 Author Members Share Posted August 15, 2006 Yesterday was a tough day for me.Doctors started my day early by telling me the needed to get Dust to Ct scan to check growth of his nodes. They also said that they would be performing a spinal tap to determine if the cancer has gotten into his central nervous system. Even if they found no cancer there they are going to start chemo in the spinal fluid as a preventative. It will happen today instead. They did start other chemo drugs last night. They finally figured out what they are dealing with.Dustin is BIPHENOTYPIC which means he has not one but two cancer traits.(Tcell LymphoBlastic Lymphoma & Acute Myelogenous Leukemia) They will treat the first as it is the Lymphoma I spoke of last and it has a high rate of remission. The tricky part is that with this condition the cancer always comes back. It comes back as leukemia in his bones. After we get this chemo underway my family will be going to give bone marrow samples to see if we are a match with Dustball. Apparently a BM transplant along with chemo is the best bet for treatment of the leukemia that will be here soon. If I find out anything how possible donor matches are found I will post about it. If we cannot find a match within our family I don't know where we can turn. I gotta go be with the boy now. Peace out. Link to comment Share on other sites More sharing options...
Members chiro972 Posted August 15, 2006 Members Share Posted August 15, 2006 Praying for your son and your family. Keep us posted. Link to comment Share on other sites More sharing options...
Members vintage clubber Posted August 16, 2006 Members Share Posted August 16, 2006 Prayers and mojo for your son... Link to comment Share on other sites More sharing options...
Members niceguy Posted August 16, 2006 Members Share Posted August 16, 2006 Believe me when I say that I wish I could do more than just hope for the best for your son... Regardless, that's exactly what I'm doing for you and your family--hoping with all I can muster. Link to comment Share on other sites More sharing options...
Members The Bear Posted August 16, 2006 Members Share Posted August 16, 2006 Originally posted by Kevman Yesterday was a tough day for me.Doctors started my day early by telling me the needed to get Dust to Ct scan to check growth of his nodes. They also said that they would be performing a spinal tap to determine if the cancer has gotten into his central nervous system. Even if they found no cancer there they are going to start chemo in the spinal fluid as a preventative. It will happen today instead. They did start other chemo drugs last night.They finally figured out what they are dealing with.Dustin is BIPHENOTYPIC which means he has not one but two cancer traits.(Tcell LymphoBlastic Lymphoma & Acute Myelogenous Leukemia)They will treat the first as it is the Lymphoma I spoke of last and it has a high rate of remission. The tricky part is that with this condition the cancer always comes back. It comes back as leukemia in his bones. After we get this chemo underway my family will be going to give bone marrow samples to see if we are a match with Dustball. Apparently a BM transplant along with chemo is the best bet for treatment of the leukemia that will be here soon. If I find out anything how possible donor matches are found I will post about it. If we cannot find a match within our family I don't know where we can turn.I gotta go be with the boy now. Peace out. Man, hate to hear this new diagnosis.I could only imagine how hard it is, but stay strong for him.I pray that there is a match in your family.Chances should be good for that , yes?It's clear that everyone here is pulling for you and your son.I think I can speak for everyone, we will do anything we can to help you. The Bear Link to comment Share on other sites More sharing options...
Members sonrise Posted August 16, 2006 Members Share Posted August 16, 2006 Keep me informed on the bone marrow matches..I have heard where complete strangers were tested and matched to someone...Id be willing to be tested if need be...I do have HEP C, already though and dont know if the drs. will allow it...If they say yes, Id be willing to give it a shot... In the mean time May the Peace of God be with you and your family...May He bless you all with an extra measure of His strength and mercy... Link to comment Share on other sites More sharing options...
Members whiskee Posted August 16, 2006 Members Share Posted August 16, 2006 Lots of MoJo! Link to comment Share on other sites More sharing options...
Members basschick22 Posted August 16, 2006 Members Share Posted August 16, 2006 God Bless you and your family, Kevman and Dustball! Link to comment Share on other sites More sharing options...
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