Members MattSkibaIsGOD Posted November 17, 2008 Members Share Posted November 17, 2008 Glad to hear things are going well for your son K-money. Link to comment Share on other sites More sharing options...
Members live-I-evil Posted November 18, 2008 Members Share Posted November 18, 2008 Everything I got was and is still being sent your way. Mojo to you and yours and I'm glad it's lookin' good. Link to comment Share on other sites More sharing options...
Members ShadowSong Posted November 25, 2008 Members Share Posted November 25, 2008 awesome news - more mojo - more mojo - more mojo oh and nice warmoth tele. Link to comment Share on other sites More sharing options...
Members seven58 Posted November 25, 2008 Members Share Posted November 25, 2008 I check in from time to time. Cancer has taken a lot of people I care about. I am thrilled to keep reading good news here. Best wishes and more mojo sent. Live Strong! Link to comment Share on other sites More sharing options...
Members Shamdog Posted November 25, 2008 Members Share Posted November 25, 2008 cancer's an assholeQUOTE]A man of few words... Link to comment Share on other sites More sharing options...
Members xXheadbangerXx Posted December 2, 2008 Members Share Posted December 2, 2008 i know how you feel i was just diagnosed with diabetes,nowhere near as bad but still a huge shock. Link to comment Share on other sites More sharing options...
Members Moggo Posted December 2, 2008 Members Share Posted December 2, 2008 All the best to you and your son Kevman, I saw this thread months ago and just happened upon it again.Good luck to you both. Link to comment Share on other sites More sharing options...
Members cybersecretary Posted December 10, 2008 Members Share Posted December 10, 2008 how bout an up date? How is dustball doing? Link to comment Share on other sites More sharing options...
Members Fusion1 Posted December 10, 2008 Members Share Posted December 10, 2008 I hope Dustin is doing well, he is in my prayers. Link to comment Share on other sites More sharing options...
Members ymb Posted December 11, 2008 Members Share Posted December 11, 2008 Here's another dad with his son as his best jamming partner wishing you and yours all the best. and I agree{censored} CANCERpeace Link to comment Share on other sites More sharing options...
Members Kevman Posted December 11, 2008 Author Members Share Posted December 11, 2008 Hey everybody its update time.Dustin is doing well. While he has had some GVH (Graft vs. Host) issues they seem to have been able to counter those effects with a regimen of meds. The GVH thing stuck most prominently and severely during Thanksgiving while we were down in VA visiting my family. They had recently begun to wean him off of some of his meds and adjusted dosages on several others with the steriod Prednosone being one of them.His body said "WTF" and the GVH stuck it to him leaving him with red splotchy, burning, itchy skin over his entire body. It was bad enough that for 2 of the 5 days we were on vaca he was pretty much resigned to staying in bed being miserable. Sucks big time.The Docs were called and made a couple of adjustments to his meds and called the changes in to the local pharm and he is all better now.On to the bigger picture.....Dustin has been released from the care of the Transplant specialists (GOD BLESS THESE PEOPLE) at Hackensack U med center. His levels and chems are all good and they (along with our insurance co i'm sure) are confident that Dustball's regular pediatric oncology staff can handle things from here on in. He will still be undergoing monthly spinal taps and bone marrow biopsies but these tests will be administered by his PED/ONC team rather than the Transplant folks.He will visit the transplant team next summer at 1 year from the start of the transplant proccess.In other news his Broviac port has been removed! This has been a point of frustration for him for a long time due to the difficulty it has presented. It's hard to shower with one, you have to saran wrap a good portion of your chest to keep contaminants out. The dressing must be changed weekly which is tough on a kid like Dustin who is more man at this point than kid and very ..um.."furry" you get the picture.Here is what a port looks like:Now that he has no port he has to endure getting stuck (multiple times usually due to his bad veins) for any bloodwork or transfusions but he hasn't needed a transfusion for a while now so I guess they thought it'd be better to get the thing out of him. Plus now he can go shirtless without being self concious about the tubes swinging out of his chest. Chicks do not dig swinging tubes sticking out of your chest.We are cruising right along and I know things are going to continue to get better for Dustin. He rules and continues to be my hero.pics to follow...God bless you all and the happiest of Hanukkahs and merriest of Christmas' to you. Link to comment Share on other sites More sharing options...
Frets99 Posted December 11, 2008 Share Posted December 11, 2008 Thanks, Kevman. It's good to hear that there is a decent amount of progress to report. You guys have the best holiday season!!!! God bless you! Link to comment Share on other sites More sharing options...
Members Shamdog Posted December 11, 2008 Members Share Posted December 11, 2008 That's the best Christmas present I'll get this year! Link to comment Share on other sites More sharing options...
Members Kevman Posted December 11, 2008 Author Members Share Posted December 11, 2008 Thanks Fretts99! Here are the most recent Dustball images I have uploaded.This one is late summer after his release from the hospital after 2 bone marrow transplants:This is my parents (saints) and kids over Thanksgiving:Thankfull like you don't even know.This one is me, my bro and his wife along with all our kids:I like the Sasquatch beard he has going. Link to comment Share on other sites More sharing options...
Members Roy Posted December 11, 2008 Members Share Posted December 11, 2008 nice lookin' family. good news about dustin. hope you all have a happy holiday also. Link to comment Share on other sites More sharing options...
Members cybersecretary Posted December 11, 2008 Members Share Posted December 11, 2008 thanks for the up date.. great photos..nothing better than port removal! Happy Holidays to you and yours!cheers! Link to comment Share on other sites More sharing options...
Members oceanofnoise Posted December 11, 2008 Members Share Posted December 11, 2008 That's a heck of a beard! Glad things are still going well, and happy Christmas! Link to comment Share on other sites More sharing options...
Members GuitarNoobie Posted December 12, 2008 Members Share Posted December 12, 2008 great news Kevman... Link to comment Share on other sites More sharing options...
Members jjpistols Posted December 12, 2008 Members Share Posted December 12, 2008 you guys are {censored}in badasses Link to comment Share on other sites More sharing options...
Members ElectricEye Posted December 12, 2008 Members Share Posted December 12, 2008 No better xmas present than this, Kev. Congrats, man. Link to comment Share on other sites More sharing options...
Members SoldierStape01 Posted December 13, 2008 Members Share Posted December 13, 2008 my prayers to you as well as from everyone a HC... be strong.... All things will be used to the good of the Lord. Just remain faithful and all will be well... Link to comment Share on other sites More sharing options...
Members key_daddy Posted December 16, 2008 Members Share Posted December 16, 2008 God bless you and your son. I hope you guys have the best Christmas ever. Link to comment Share on other sites More sharing options...
Members jpacman Posted December 17, 2008 Members Share Posted December 17, 2008 great news... even greater tele... haha, jk merry christmas from oregon.... i hope you and yer son can have a nice one despite that asshole we know as cancer.. Link to comment Share on other sites More sharing options...
Members wrxplayer Posted December 18, 2008 Members Share Posted December 18, 2008 I'm kind of new here but just read much of this thread. What great news for Dustin and what great support so many of you provided and I'm sure will continue to provide. God bless. Link to comment Share on other sites More sharing options...
Members Kevman Posted December 25, 2008 Author Members Share Posted December 25, 2008 Merry Christmas everybody! Link to comment Share on other sites More sharing options...
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