Members Kevman Posted June 8, 2008 Author Members Share Posted June 8, 2008 Day +12. Dustin is doing some better. It is encouraging to ask him if he feels better than the day before and to hear him reply "yes". His White Blood Cell count is still dragging across the floor at .01 and his hemoglobin is low as well. He got a couple units of blood on Thursday and again yesterday. The sores in Dustins mouth and throat are still there although we are seeing improvement in the mouth. He was still unable to eat yesterday afternoon. The WBC count should start to increase in the next 2-3 days which will aid in him healing. The rash (i think its burns from radiation) on his neck and backs of his hands looks to be healing. He has lost right at 20#s over the last 15 days or so. Not too bad considering he can't eat. We are still in the wait and see phase so that's what we'll do. In the meantime he is listening to music constantly and watching funny movies or reading. Now that his mouth doesn't hurt soo badly he is actually enjoying the flicks i think whereas before he was just watching them as background noise. gt5liter, I don't know what to tell you but you keep the positivity flowing for your wife. She needs to see it and be a part of it. God bless you. Kev Link to comment Share on other sites More sharing options...
Members alley trash Posted June 8, 2008 Members Share Posted June 8, 2008 Slow progress is still better than no progress & it's good to see that you're keepin your head up & that your spirit is strong! Have a blessed day Kevman! gt5litre, thoughts, prayers & mojo sent your way! Link to comment Share on other sites More sharing options...
Members The Bear Posted June 8, 2008 Members Share Posted June 8, 2008 Day +12.Dustin is doing some better. It is encouraging to ask him if he feels better than the day before and to hear him reply "yes".His White Blood Cell count is still dragging across the floor at .01 and his hemoglobin is low as well. He got a couple units of blood on Thursday and again yesterday.The sores in Dustins mouth and throat are still there although we are seeing improvement in the mouth. He was still unable to eat yesterday afternoon. The WBC count should start to increase in the next 2-3 days which will aid in him healing.The rash (i think its burns from radiation) on his neck and backs of his hands looks to be healing. He has lost right at 20#s over the last 15 days or so. Not too bad considering he can't eat.We are still in the wait and see phase so that's what we'll do. In the meantime he is listening to music constantly and watching funny movies or reading. Now that his mouth doesn't hurt soo badly he is actually enjoying the flicks i think whereas before he was just watching them as background noise.gt5liter,I don't know what to tell you but you keep the positivity flowing for your wife. She needs to see it and be a part of it. God bless you.Kev It's good to hear that he's doing better with the sores, and the burns.These are good signs.The strength of your family and friends will see you all through this.Give him our best and more prayers and Mojo sent. Link to comment Share on other sites More sharing options...
Members karma279 Posted June 9, 2008 Members Share Posted June 9, 2008 I think this is my first post in here; but I check back often for updates. Glad to hear it's going well. It's inspiring to see how strong Dustin is. It's amazing what optimism and postive energy will do. Best of luck to you guys. I send out the best vibe I can.... Keep rockin' Link to comment Share on other sites More sharing options...
Members Shamdog Posted June 9, 2008 Members Share Posted June 9, 2008 Kev - Keep him rocking. More mojo sent. Link to comment Share on other sites More sharing options...
Members bsman Posted June 9, 2008 Members Share Posted June 9, 2008 Sounds like Dustin is over the worst of it. I hope it's all downhill (I mean that in the GOOD way!) from here on out. I've got two kids of my own (25 and 17) and can only imagine what you have been through through over the past year or so. I hope that as his health improves, you will be begin to feel some relief and release from all of the stress and worry you've had. I fervently hope that life will be good for you from here on out! Link to comment Share on other sites More sharing options...
Members Prodigal.Son Posted June 14, 2008 Members Share Posted June 14, 2008 My prayers are out to your son and you and your family. God Bless you all. Link to comment Share on other sites More sharing options...
Members alley trash Posted June 15, 2008 Members Share Posted June 15, 2008 Hey! Happy Fathers day Kevman!!!!! Hope all is well w/ you guys & you're enjoying the day! Link to comment Share on other sites More sharing options...
Members RICK330MAN Posted June 15, 2008 Members Share Posted June 15, 2008 Today being Father's Day, I thought of you and your son. As a father of boys, your story really hits home. My brother fought cancer when he was in college. I have a sense of what you are going through. Hang in there. Wishing you, your family and your son all the best. Link to comment Share on other sites More sharing options...
Members OnWingsOfLead Posted June 16, 2008 Members Share Posted June 16, 2008 Prayer and mojo sent Link to comment Share on other sites More sharing options...
Members ZachBMTH Posted June 16, 2008 Members Share Posted June 16, 2008 Mojo sent plus some. Keep us updated about him, I hope he gets better Stay positive =] Link to comment Share on other sites More sharing options...
Members GuitarNoobie Posted June 17, 2008 Members Share Posted June 17, 2008 more mojo sent your way Dustball and Kevman Link to comment Share on other sites More sharing options...
Members Kevman Posted June 17, 2008 Author Members Share Posted June 17, 2008 Things could be better here. I guess they could also be worse. Dustin had a bone marrow biopsy yesterday to check progress on the new cell that should be engrafting to create his new marrow. We knew his white cell counts were low (still in the .1 to .3 range) but sometimes it takes several days for the WBC to find there way to the blood stream from the marrow. Well, there just aren't many cells in the marrow either. For the next 4-5 days we will watch to see if Dustin's system is just taking it's time or if the transplant isn't taking. If it is not they are going to do it again. Rough things to hear. They would have to re-irradicate his immune system for several days and we would be on the schedule of the donor. The boy is demolished. His spirits weren't high to begin with, he missed graduation yesterday. Now his mind is already on having to go through this again. 3 weeks in isolation so far with the possibility of another 4-6 is daunting for everyone. Not the way I'd want to spend my 18th summer for sure. Was kinda hoping for a nicer fathers day gift than this. I'm kind of a wreck too. I have someone going in to see Dustin today I should probably seek the same sort of help. Link to comment Share on other sites More sharing options...
Members FUBTAG Posted June 17, 2008 Members Share Posted June 17, 2008 Always best to be able to get those words and feelings out. There's no shame in 'help'. We are all pulling for both of you. Link to comment Share on other sites More sharing options...
Members cbh5150 Posted June 17, 2008 Members Share Posted June 17, 2008 Kev, you and Dustin have gone through hell ten times over, so don't be afraid to talk to someone and vent, etc. Here's hoping, though, that Dustin's system kicks in hard and fast ! Link to comment Share on other sites More sharing options...
Members DRPool Posted June 17, 2008 Members Share Posted June 17, 2008 Kevman, we just continue to pray for Dustball's healing and recovery. In time you will all be blessed for your perseverance and resilience. Catch your breath, talk to someone who can bring some perspective to all this and keep on fighting. Happy belated Father's day to you, you are indeed one hell of a Dad. Link to comment Share on other sites More sharing options...
Members pixelchemist Posted June 17, 2008 Members Share Posted June 17, 2008 As a dad myself and a member of a family with a long history of cancer... you and your son have my prayers. Link to comment Share on other sites More sharing options...
Members revans513 Posted June 17, 2008 Members Share Posted June 17, 2008 Hey Kev, Get some help........read the love and well wishes in this post again. We aren't giving in here, neither should you. I know it's hard, but you are needed. Stand tough. Meanwhile, prayers and best wishes. If there is anything we can do, let us know. Link to comment Share on other sites More sharing options...
Members GuitarNoobie Posted June 17, 2008 Members Share Posted June 17, 2008 what else can I say that hasn't been said, hang in there... More prayers your way Kevman !!! Link to comment Share on other sites More sharing options...
Members alley trash Posted June 18, 2008 Members Share Posted June 18, 2008 ^^^^ same here^^^^ You've got tons of people praying & sending mojo too, you're doing your best & everyone sees that! You guys will be on top of this pretty soon! Link to comment Share on other sites More sharing options...
Members Shamdog Posted June 18, 2008 Members Share Posted June 18, 2008 Kev- That's tough news...Especially after this weekend. Dude, hang tough for your boy. If you need a shoulder, I'm here. You know how to find me. More mojo sent. John Link to comment Share on other sites More sharing options...
Members mmcquain Posted June 18, 2008 Members Share Posted June 18, 2008 Kevman - you and Dustin hang tough. I'm saying a prayer for you right now and will add you to our church's prayer chain. Link to comment Share on other sites More sharing options...
Members jrockbridge Posted June 18, 2008 Members Share Posted June 18, 2008 Prayers and... Link to comment Share on other sites More sharing options...
Members ZachBMTH Posted June 19, 2008 Members Share Posted June 19, 2008 stay strong man if you need help, there is no shame in it good luck to you guys, we are not giving up on you man Link to comment Share on other sites More sharing options...
Members DAFSTRAT Posted June 19, 2008 Members Share Posted June 19, 2008 Being a father, I cant even comprehend how you must be feeling right now.My thoughts are with you. Same. All the very best. Link to comment Share on other sites More sharing options...
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